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National Epilepsy Week event highlights experience of living with condition

During National Epilepsy Week (23 – 29 May 2022), leading health and social care charity Quarriers has been helping to raise awareness about the neurological condition that affects more than 54,000 people in Scotland.

A special event was held on Friday 20 May at the William Quarrier Scottish Epilepsy Centre, a specialist hospital set up in 2013 by Quarriers, in partnership with NHS Scotland, which supports thousands of people requiring specialist diagnosis. The event helped shine a light on epilepsy through a programme of talks about the importance of social support and the role of the hospital in providing specialist diagnosis to patients referred by the NHS.

It remains the country’s only specialist hospital for people with epilepsy. A new fundraising bid is about to be launched to ensure that the medical technology the hospital uses remains cutting edge and provides an unparalleled patient experience.

Patient Participation Coordinator Sharon Thompson shared her experience of epilepsy and how this benefits her role in making sure that patients get the most out of their assessment time at the hospital, whilst Dr Iain Campbell, Principal Clinical Psychologist, introduced the newly-established Lifestyle Management project, designed to address the non-medical aspects of living with epilepsy. Dr Ron Culley, CEO at Quarriers, was joined by MSP Alasdair Allan to discuss the role of the Scottish Parliament’s Cross Party Working Group which seeks to ensure issues affecting people with epilepsy are highlighted at a national level.

The event culminated in the official launch of Sacred Lives, a book for the general reader about how epilepsy has been perceived and understood across time, authored by renowned neurologist and researcher, Professor Ian Bone.

Dr Ron Culley, CEO at Quarriers, said:

“Year-round, our expert team at The William Quarrier Scottish Epilepsy Centre provides a bespoke service to patients and their families. I am incredibly proud that we can offer such a specialist resource to people living with epilepsy, and we are consistently looking at ways to evolve how and what we offer, as we can see the benefit it has on people’s health and wellbeing.

“Our recent event provided the perfect platform to engage with partners, patients and of course Professor Ian Bone whose critically acclaimed research has made a significant impact on our understanding of epilepsy and its treatment. It was a privilege to officially launch Sacred Lives which includes both a personal and medical perspective of living with epilepsy, and I’m confident the book will go on to be another of his great successes.”